Personal trainer, who thought cough was Covid, said she had 18 months to live

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A super fit training coach who believed a “tickling cough” was Coronavirus has since learned that she has eight malignant tumors, including five in her brain.

Jenny Weller, was diagnosed as ALK positive Lung cancer in September 2020 after cancer cells were found.

The 36-year-old who has never been drunk alcohol or smoked a cigarette in her life initially thought she contracted Covid-19 after symptoms flared.

However, doctors believe Jenny’s cancer began in late 2019 and confirmed in February of this year that she only has about 18 months to live.

Jenny, who collects donations with her family name with the hashtag #wellerfest

Determined to make the world a better place, Weller, who lives with husband Steve, 61, is now using her incredible fitness to raise funds for basic cancer research.

Jenny said, “We didn’t think we’d ever have to deal with this.

“Nobody ever wants to hear that they don’t have forever to live. But at the same time I am satisfied with my lot. I’ve achieved many things that I wanted to achieve. “

She continued, “I’m trying not to focus on what I’m leaving behind, but on doing what I can while I’m still here.”

Jenny, who collects donations with her family name with the hashtag #wellerfest, dismissed her dry cough as a seasonal cold for the first time at the end of 2019 and thought when Covid showed up that she must have had the virus Body daily mail.

She added, “The nature of personal training is that we take people outside a lot in the cold and wet.

“It wasn’t uncommon to have a cold or a cough at this time of year. It’s just that it hasn’t disappeared. “

Still firing on all cylinders despite her cough, Jenny of Burgess Hill, West Sussex happily ran her business, a personal training studio called Rapid Results PT in North Chailey, East Sussex, giving her all life as usual.

“It was just a really dry, dry cough and it didn’t really affect me unless I tried hard,” she said.

Jenny had five other tumors in her brain, one of which was the size of a golf ball

She continued, “If I did exercise I would cough or if I lay down to fall asleep I would cough a lot – but otherwise it didn’t really affect me for a few months.”

In March 2020, as the world fell into lockdown, the coronavirus pandemic provided another explanation for Jenny’s mysterious cough.

“I just attributed the fact that I wasn’t recovering to the fact that I either had Covid because no one was really tested at the beginning, or that I wasn’t getting enough sleep because of the stress of closing the gym and going to work change. “online.”

She added, “Nobody really went to the doctor with just a cough at this point.”

As the lockdown wore off and she was able to work outside with customers, her symptoms worsened.

Jenny got a raging headache and occasionally got sick when she changed positions and sat down or stood up abruptly.

But it wasn’t until a lump appeared on her neck that she made a phone appointment with her family doctor.

She said, “I had an ugly, throbbing, terrible headache and I was losing weight because I couldn’t keep my meals right.

“When the lump appeared on my neck, I called my family doctor for a phone appointment, then he asked me for an examination.”

She added, “At that point he said, ‘I don’t want to worry you, but I think this is probably something serious.'”

Her family doctor referred her to an ear, nose and throat consultant in six weeks – but her condition has deteriorated significantly in the meantime.

She said, “It was a public holiday Monday at the end of August 2020, I had just walked the dog and felt totally exhausted and crashed on the sofa.

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“I tried going upstairs to use the bathroom but I passed out, fell down, and collapsed downstairs,” she added.

“I don’t know exactly how long I was there.

“I then tried to get sick in the kitchen, but I collapsed again.”

Jenny continued, “The next thing I remember is Steve coming home and finding me on the floor in the kitchen after a seizure, so we called 111.

“First they took me to the Princess Royal Hospital in Haywards Heath, then in the evening I was transferred to the Royal Sussex County Hospital in Brighton for scans.”

Over the course of five days, Jenny – an avid rugby player – had various scans and a biopsy of the lump in her throat, which led to a diagnosis of ALK-positive lung cancer.

Despite her super healthy lifestyle, she had a 35mm tumor in her lungs and the cancer had spread and formed five other tumors in her brain – one of which was the size of a golf ball. She also had another tumor in her lymph nodes and one in her pelvis.

When an inpatient at an oncology ward realized that her situation was serious when surgery to remove the golf ball-sized brain tumor cleared her headache overnight, she was optimistic about her chances of recovery.

But when the word “terminal” was finally used to describe her cancer in February of that year, she admitted it was a bitter pill she had to swallow.

She said, “I had endured some pretty invasive surgeries and radiation therapy treatments, and in February I asked the doctor, ‘When will I get my life back? When can I go back to work? When can I drive? ‘

“She said, ‘You should prepare not to go back to your previous fitness level and lifestyle.'”

This was a major blow to Jenny, who has been running her business since her diagnosis in September 2020 as she tried to regain a sense of normalcy and was looking forward to maybe starting training again.

She said, “I thought, ‘This can’t be right, that’s my goal.’ Then the doctor said, ‘Well, you have terminal cancer.’

“That was the first time the word ‘terminal’ was used.

“I thought I had five or six years to live, but then she said the expectation was one or two years and that I was already six months old.”

A remarkably positive thinker, instead of giving up, Jenny simply changed her priorities and instead of working hard to maintain the appearance of normalcy, she focused on raising awareness of her type of lung cancer and making donations to the Brain Tumor Research and ALK charities – Collect positive UNITED KINGDOM.

Starting with fundraising for Wear a Hat Day, which featured a Facebook video of her in a woolly hat asking people to donate money to brain cancer research, she raised nearly £ 1,000.

Inspired by her success, Jenny and her family launched the hashtag #wellerfest and launched a series of athletic fundraisers to raise money.

In September 2021, she abseiled from the Spinnaker Tower in Portsmouth.

On November 28th, #wellerfest is hosting a wild swim on the East Sussex coast in Hove and in spring 2022 there will be a sponsored bike path from John O’Groats to Lands End and a mountain tour and cable car ride in Snowdonia – like Jenny on wants to raise her legs 30,000 pounds before she dies.

If there was more attention to ALK positive lung cancer, she would have sought medical help sooner and her life expectancy could now be more positive.

She said, “I just have a cough, lung cancer never even crossed my mind.

“I think because of the age difference between me and my husband, the natural expectation that we would get to a point where I would be more likely to take care of him was that I would be the one left behind.

“Of course that’s unlikely now.”

She continued, “But I don’t focus on what I’m leaving behind, I do what I can while I’m still here.”

Useful links to learn more about brain tumor research and ALK positive lung cancer and for Jenny’s Facebook fundraiser are: www.alkpositive.org, www.braintumourresearch.org and www.facebook.com/wellerfest.


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