A six-year-old boy who has just completed cancer treatment is about to take part in a special fundraising event. Cohen Earley will be raising money for a fund set up in his name which raises money for research into the form of the disease he had.

Cohen, from Narborough, was diagnosed with rhabdomyosarcoma in May 2020 and his family set up Cohen’s Fight, to raise money for the Children’s Cancer and Leukemia Group (CCLG), later that year. The money raised is used to research gentler and more effective treatments for soft tissue cancer.

Cohen completed his treatment in January this year and is now looking forward to taking part in a wizarding and superhero-themed 5K fundraising run on Sunday, April 24. The idea for the event came from Cohen’s best friend and classmate, Ava Goss, who will join him in the run around the couple’s local park, Southey Close Recreational Ground in Enderby.

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Cohen’s mom, Kat, and Ava’s mom, Nicole, invited other children and their families to participate in the race and collect sponsorships. There will also be bucket drives on the day to help boost fundraising.

Kat said: “We want as many kids as possible to participate and we can enjoy an afternoon on the green with refreshments. There’s no pressure on how it’s completed, kids can run or walk, however they like.

“Cohen will and is looking forward to it. He likes to run and he will be encouraged by his friends and the other children. Cohen and Ava are in training and they both wear wizard capes, so they want it to be a wizard or superhero theme.

“They are wizards in training, which is lovely. We want to make it a really fun day and it will be a good opportunity to get everyone down in the community. We look forward to bringing children and families together to raise funds for much needed rhabdomyosarcoma research.

Ava’s mum Nicole said: “Ava loves running and is always thinking of ways to raise money to help people, so a 5K for charity seemed like the perfect idea. We also wanted to support our local park which just got saved from a major housing development, so the idea of ​​a fun race on the park was perfect.

“When we were discussing which charity to raise money for, there was no doubt that she wanted to support CCLG through Cohen’s fund. She’s always wanted to help Cohen through his treatment and she’s thrilled they can now have a fun run together while supporting a cause close to our hearts.



Ava and Cohen dressed as wizards

“Ava and Cohen are beyond excited for the day and we can’t wait to see them having fun with all their friends!” According to Kat, the couple has a special bond and Ava has been a huge support for Cohen.

Kat added: “They’re just crazy together, so funny and they have their own imaginations together, it’s nice to see. They get along so well together and Ava is a really, really good friend.

Since the fund was set up in August 2020, the family have raised nearly £8,000. Kat spoke about the importance of fundraising, both in terms of what it means for her and other families facing the same diagnosis in the future, and thanked everyone who supported the fund. until now.

She said: “For me, it’s so important and it gives me a kind of purpose. It’s hard not to think about the other results. We are still unclear and I think we are still coming to terms with what we have been through for the past two years.

“There are so many children and families that I hear about, almost every day, that they have been affected by rhabdomyosarcoma. The treatment is so unforgiving for them, and I think that’s the only way to try to make a difference for them.



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Cohen during his cancer treatment

“We must be one of the lucky families coming out on the other side, but we want to do something and help fund research projects that we want to make a huge difference and we will continue to do so.

“The generosity we have witnessed from the local community is simply amazing. People really want to help and make a difference. It’s good to know that we can organize these events and continue to do things like this to raise much needed money.

“A huge thank you must go to everyone for every penny donated, it means a lot. Every penny makes a difference. I can’t wait to see what kind of research projects we can invest this money in in the future.

In addition to fundraising, another element of the fund’s efforts is outreach, which Kat was keen to emphasize.



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Cohen rings the hall bell at the end of his cancer treatment

She said: “Awareness is extremely important to us now. We were so blind to what children face every day before Cohen’s diagnosis. It’s a really difficult subject, difficult to bring up with anyone, but it’s there and it has been there all the time.

“I just want to make people aware of that and that children need better treatment. We didn’t know anything to do with it, and we never thought we would have to deal with something like this, so it’s so important for people to know. And if things like early diagnosis can happen through awareness, then so much the better.

To learn more about Cohen’s fight against cancer, click here and make a donation on the Justgiving page by clicking here.